Abu dhabi: The global community marked International Thalassaemia Day on May 8, emphasizing the theme 'Hidden No More - Finding the Undiagnosed. Supporting the Unseen.' The observance aimed to bring visibility to those affected by thalassaemia who remain overlooked and underserved.
According to Emirates News Agency, International Thalassaemia Day is dedicated to raising awareness among the public and decision-makers about thalassaemia. It focuses on promoting the ongoing struggle of patients against this severe blood disease, commemorating those who have passed, and renewing the commitment to finding a cure. The Thalassaemia International Federation (TIF) highlighted the challenges faced by individuals worldwide, stressing the importance of identifying undiagnosed individuals due to limited access to screening and supporting those whose daily struggles are often unrecognized.
A key component of the global campaign is the 'Bring to Light' initiative, which invites the illumination of buildings, monuments, and landmarks in honor of International Thalassaemia Day. This global action transforms cities into expressions of awareness, recognition, and hope, capturing public attention and fostering understanding.
The 'Your Journey, Your Story' initiative continues to provide a platform for patients, caregivers, and healthcare professionals to share their experiences. This initiative humanizes the condition and highlights the realities of living with thalassaemia, acknowledging the unseen burden on caregivers and the dedication of healthcare providers.