Dubai: The UAE Rare Disease Society has announced its successful bid to host the International MPS Network (IMPSN) Conference in 2028, marking the first time this prestigious event will be held in the Middle East and North Africa. This milestone was revealed by Dr. Noha Al Zaabi, President of the 4th International UAE Rare Disease Society Congress, at the Congress's official opening in Dubai.
According to Emirates News Agency, Dr. Al Zaabi emphasized the significance of the Congress as a platform that extends beyond scientific discourse, aiming to foster hope, partnership, and action among healthcare professionals, researchers, policymakers, patients, and their families. The Congress features two main tracks: a scientific track and a family track, with over 70 speakers, including international experts, participating in lectures, workshops, and symposia. This diverse program seeks to integrate scientific excellence with the real-world experiences of patients and their families.
Dr. Hussein Al Rand, Assistant Undersecretary for the Public Health Sector at the Ministry of Health and Prevention, highlighted the UAE's commitment to advancing healthcare systems, focusing on prevention, early diagnosis, and precision medicine. He affirmed the Ministry's dedication to supporting national efforts aimed at preventing inherited diseases through enhanced genetic screening and counselling services.
Dr. Al Rand also noted the Congress's focus on significant transformations in the field, such as premarital genetic screening, advanced sequencing technologies, and innovative therapies. He stressed the need for stronger connections between scientific research and clinical practice, as well as the importance of empowering healthcare professionals through collaboration across various sectors.
Nafisa Tawfiq, Chairperson of the UAE Rare Disease Society, emphasized the Society's role in connecting rare disease patients and their families with healthcare providers and decision-makers. She outlined the Society's family program, which focuses on quality of life and support systems in alignment with the UAE's Year of the Family.
The Congress also featured discussions on the transition from pediatric to adult metabolic care, premarital genetic screening, and the integration of advanced technologies for the diagnosis and treatment of rare diseases. Sessions highlighted the importance of inclusive policies and community support in improving the quality of life for individuals living with rare diseases.
The event, held from September 18 to 20, continues to serve as a vital platform for exchanging knowledge and building collaborations under the theme "United for Rare: Empowering Families, Advancing Care." Hosted under the patronage of the UAE Ministry of Health and Prevention, the Congress draws experts, researchers, patient advocates, and families from around the world to discuss the latest advancements in rare disease care.